Girl's allergy to water is so extreme even a tear rolling down her cheek leaves her in agony
17-year-old Niah Selway is in pain every day, yet she dares
not cry. She is so allergic to water that even her own tears make her skin
erupt in excruciating hives.
She is one of only 35 people in the world to suffer from
aquagenic urticarial.
Niah said:
“Living with it is a nightmare. When water comes into
contact with my skin it feels like it’s burning. I’m in a lot of pain and
there’s nothing anyone can do.”
The distressing symptoms began when she was five but no one
could work out the cause.
So, just like her pals, she went swimming, would get caught
in rain and splashed in puddles, never suspecting it was the water that
triggered her painful rash.
But as she got older Niah decided to investigate online. She
said:
“I found a few stories. One was a girl in America who
suffers from the same thing and I was like, ‘Wow, finally I’ve found a name for
it’.”
A dermatologist diagnosed aquagenic urticaria but there is
no cure.
Niah, who can drink water pain-free, explained: “I’m trying
different strengths of antihistamine to see if they can help the level of my reaction
but they won’t ever stop it.”
So the plucky business student from Hastings, East Sussex,
accepts she must live with her discomfort.
When she showers, Niah has to time her soak just right to
make it as pain-free as possible. “I can be in there for five minutes before it
starts happening,” she said.
“But if I were to get out straight away it would get worse
so I have to stay in the shower until it stops.
"Even though water makes me have the reaction it’s the
water that soothes it as well. I can never tell how long I’ll be in the shower
because it depends on the level of my reaction.
“When I take off make-up with baby wipes and use toner and
moisturiser it really stings. My face burns for up to half-an-hour but I have
to do it.”
Boyfriend Hussain hates to see Niah suffer. She said: “It’s
really horrible for him because I just need to be left alone.”
And the cruel allergy means that if it all gets too much,
just one tear makes the pain even worse.
Niah sighed: “It will start to sting and feel really sore
and difficult to touch.”
UK Mirror